Dammit. Now I have another disease: Celiac. I’m not happy about this one. I love gluten and have silently made fun of all those people who go gluten free because it’s the in thing to do right now. This is going to be really hard on the road with work. Try going into small town Saskatchewan and saying “Hello. I’m a vegetarian and have celiac disease. What can you make for me?” I’m going to have to travel with all my own food. And beer! Ahhhhhhh, I can only have gluten-free beer now! I’m not a huge beer drinker anyway, but I do love my stouts now and again. Dammit Dammit Dammit. Just yesterday I was talking with my friend that owns a bakery in central Saskatchewan, who I met because of field trips, and I told her that her rye bread and cinnamon buns might just cure me. It could still be true. If you’re ever in Wynyard, Saskatchewan check out the Wynyard Bakery. It seriously has the best rye bread in Saskatchewan. And while I’m promoting bakeries, the bakery in Consul, Saskatchewan just so happens to have some pretty good eats too. My favourite there is the cinnamon buns, but I guess I’ll have to start buying more of their gluten-free bread. It truthfully is the best gluten free bread I’ve come across, and I usually brought some home for my non-gluten friends. One of my best friends will be secretly pretty please about this. She’s been telling me I needed to go gluten free forever and I keep telling her to shut up. And now she’s right, which she’ll rub in my face quite a bit. It’s a good thing I love her (and she makes really tasty gluten-free cookies and cakes).
I finally posted this on facebook:
“On February 12, after weeks of being sick with a virus I had an Addisonian Crisis and was brought to the hospital by ambulance. 4 days later when I couldn’t move my legs we all realized something else was wrong. We went through some rough times and frustrations in the hospital, with some definite deficiencies in the level of care received, but thanks to my wonderful husband and my incredible mother, finally got paired up with the correct (and competent) specialists. I’ve been diagnosed with Myasthenia Gravis and Celiac Disease. So many of you have done so many wonderful and varied things for us throughout this difficult period, and I can’t thank you enough. I should be going home very soon, with supports in place for me to continue the healing process. We’ve got a long way to go still, but have seen definite improvement and will continue down that road until life is back to normal. For those of you who want to learn about MG, check out http://www.myasthenia.org, for those of you that want to learn about it the humourous way, check out this video. https://m.youtube.com/watch?feature=youtu.be&v=LBiz_41ucp”
On some level it feels good to get it over with, and also as if I’ve accepted it on another level of consciousness. On another level I feel very exposed and raw, but I owe it to the people that love me and have blindly supported me to be able to give it a name. Things are easier to understand and accept when there’s knowledge that goes along with it and my people deserve that.